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Alianța Europeană pentru personalizată Medicina

Actualizare EAPM: Combaterea cancerului cu părțile interesate și date - Înregistrați-vă acum!

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Good afternoon, health colleagues, and welcome to the European Alliance for Personalised Medicine (EAPM) update of the week – as the days speed by, it is now high time to register for the upcoming EAPM event on 17 September that will take place during the ESMO Congress, details below, writes EAPM Executive Director Denis Horgan.

‘Cancer in its many forms’

As mentioned in previous updates, the conference, EAPM’s ninth annual event, is entitled ‘The need for change – and how to make it happen: Defining the health-care ecosystem to determine value’. The event will take place on Friday, 17 September from 08h30–16h00 CET; here is the link pentru înregistrare și iată link către agendă.

This dynamics series of roundtable will look at different elements of this through the following sessions: 

  • Sesiunea I: Câștigarea încrederii părților interesate în partajarea datelor genomice și utilizarea dovezilor/datelor din lumea reală
  • Session II: Bringing Molecular Diagnostics into healthcare Systems
  • Sesiunea III Reglementarea viitorului - Echilibrul siguranței pacientului și facilitarea inovației – IVDR
  • Session IV: Saving lives through health data collection and usage

Many of the points that are highlighted below will be discussed at the conference. 

Data points way forward to beating cancer

Parliament’s Special Committee on Beating Cancer (BECA) convened on Thursday (9 September) to focus on two key cancer care and research issues. First up on the Committee’s agenda was a discussion with the European Commission on the creation of a European Health Data Space.

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The Commission’s Beating Cancer Plan envisages electronic health records playing a crucial role in cancer prevention and care and is looking to make the most of the potential of data and digitalisation, through its European Health Data Space initiative to improve cancer treatment, healthcare delivery and quality of life outcomes.

BECA Committee MEPs also held an exchange of views with the Commission on progress around the implementation of the so-called Chemicals Strategy for Innovation, which aims to deliver high levels of health and environmental protection from chemicals.

The strategy is seen as another key component of the Commission’s Beating Cancer Plan as it seeks to reduce citizen’s exposure to carcinogenic substances and other hazardous chemicals.

“The COVID pandemic has again demonstrated the fact that we are struggling to use data in order to inform the policymaking and decision-making processes,” said Ioana Maria Gligor, head of unit for European reference networks and digital health. 

The Commission is looking to fix that with a legal proposal scheduled for the beginning of 2022. 

Gligor explained that the idea is to allow health data to flow seamlessly to wherever it’s needed: between hospitals inside a country, but also between countries. 

“As of 2022, we are aiming to support access of patients to their own health data on their smart devices,” the Commission official explained. Things like genomic data can be invaluable to help diagnose rare cancers in patients, for example. And massive stores of anonymized patient data can also be used to help drive disease research using machine learning tools.

Slovenia moves EU data bill closer to the finish line

Slovenia has sharpened the restrictions for the international flows of European industrial data in a bill meant to encourage EU countries and companies to share data with each other.

Following in Portugal’s footsteps, the Slovene presidency of the EU clarified rules on the international transfer of industrial data and made small tweaks in the Data Governance Act in the fifth compromise text circulated on 7 September.

EU countries will discuss the compromise text on 14 September.

Rezultatele Eurobarometrului

The European Union has been working to contain the spread of the coronavirus, support national health systems, protect and save lives, as well as counter the socio-economic impact of the pandemic at both the national and EU level. Actions culminated in the Commission’s proposal for a Recovery Fund and modified multiannual budget for the EU, providing for an unprecedented level of support to help overcome the crisis.

Three out of four respondents across all countries surveyed say they have heard, seen or read about EU measures to respond to the Coronavirus pandemic; a third of respondents (33%) also know what these measures are. At the same time around half (52%) of those who know about EU action in this crisis say they are not satisfied with the measures taken so far.

Nearly seven out of ten respondents (69%) want a stronger role for the EU in fighting this crisis. In parallel, almost six out of ten respondents are dissatisfied with the solidarity shown between EU member states during the pandemic. While 74% of respondents have heard about measures or actions initiated by the EU to respond to the pandemic, only 42% of them are satisfied with these measures so far.

Around two-thirds of respondents (69%) agree that “the EU should have more competences to deal with crises such as the coronavirus pandemic”. Less than a quarter of respondents (22%) disagree with this statement.

This strong call for more EU competences and a more robustly co-ordinated EU response goes hand in hand with the dissatisfaction expressed by a majority of respondents as concerns the solidarity between EU member states in fighting the coronavirus pandemic: 57% are unhappy with the current state of solidarity, including 22% who are ‘not at all’ satisfied.

Strategia Farm to Fork

The European Parliament’s  Environment (ENVI) committees are voting on their joint own-initiative report on the Farm to Fork Strategy, which sets out how the EU aims to make the food system “fair, healthy and environmentally-friendly”. MEPs from both committees are expected to approve their joint Farm to Fork Strategy report on Friday and send it to plenary for a final vote scheduled for early October. 

And a group of lawmakers, led by the Greens’ Martin Häusling, are threatening to block the delegated act when it comes to the plenary of the European Parliament next week, arguing that the conditions it sets out are not sufficiently protective of human health. Overusing antibiotic drugs to treat farm animals will worsen the global problem of antimicrobial resistance (AMR), which has been termed the silent pandemic.

“Failure to move forward with these restrictions will be a missed opportunity. We do not have time to waste in fighting AMR,” Kyriakides said in the agriculture committee today.

The controversial delegated act is part of the revision of the EU’s animal health laws, which will start to apply from January 2022.

Good news to finish: Ministers hoping vaccines watchdog will back mass rollout of booster jabs 

UK ministers have piled pressure on the vaccines watchdog to approve a large-scale programme of Covid booster injections in time for winter, as the number of people in hospital with the virus exceeded 8,000 for the first time since March. 

On Thursday (9 September) the UK’s medicines regulator granted emergency approval for the Pfizer and AstraZeneca vaccines to be used as third shots to tackle potentially waning immunity, also putting pressure on the Joint Committee on Vaccination and Immunisation (JCVI) to approve a new jab programme. Hours later, the health secretary, Sajid Javid, said he was confident that such injections would begin imminently. “We are heading towards our booster programme,” he said. “I’m confident that our booster programme will start later this month, but I’m still awaiting the final advice.”

And that is all for this week from EAPM - don't forget, here is the link pentru înregistrare for EAPM's 17 September conference, and here is the link către agendă. Until next week, stay safe and well, and have a lovely weekend!

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